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Roxanne Steele
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“The families have found support. We have participants (online) from all over the world. The biggest thing we have found is the misinformation that's given to families.”
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“It was a rough few weeks.”
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“It's amazing what modern medicine has done.”
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“Without it, I don't know where we would be. Rachel's care is very intense.”
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“We really have no idea what her prognosis is. Every day is another gift. Some of it depends on what's God's plan for them.”
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“They're just wonderful with their sister. They dress her up, play with her. Rachel just loves them.”
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“It's been such an amazing learning experience, living with Rachel. She enjoys her family and we learn so much from her.”
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“Going to McDonald's, it's amazing how many people look at Rachel and then turn away and won't even look at her, won't hold the door for us.”
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“It's really drawn us back to what's important.”
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“We really wanted this weekend to be about the families and supporting each other, and putting faces to the names we see on e-mail.”
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